On being present, not perfect: compassionate communication in healthcare

It was over a decade ago that Elaine C. Meyer, PhD, RN, MBE, FSSH presented her TEDx Talk On being present, not perfect. Her message remains crucial, relevant, universal especially within maternal child health.

Image source. Used with permission.

Dr. Meyer’s powerful piece incorporates personal and professional examples which bring life to the importance of holding space for compassionate communication and difficult conversations in healthcare.

She notes the essential ingredients of these conversations: Courage, Brains, and Heart, a clever Wizard of Oz mnemonic, and she emphasizes that “Practice makes better”, not perfect, as alluded to in her title. 

Reflecting back, Dr. Meyer reports that we’ve accrued more awareness about these conversations. Compassionate communication is no longer a nice-to-have-it item; it has become an essential part of healthcare. Overall, Dr. Meyer has noticed that patients are more empowered, expecting this connection and level of care. Online rating tools have allowed for patients to evaluate providers specifically on their bedside manner.

Across the globe, On being present, not perfect has been incorporated into nursing and medical school curricula placing value on providers’ relational capacity early on in their careers. 

In a culture where health care providers are often massively stressed and burnout can be of real concern, Dr. Meyer makes clear that honoring conversation is not only of benefit to the patient. 

“… Being in relationship with the patient can be very fulfilling,” she begins. “This matters. At the end of day, a healthcare provider can say What I did matters. It can be the words that we speak, just being present, and showing up in all of your humanity. This doesn’t necessarily require extra time.” 

Take for instance the personal vignettes she shares in On being present, not perfect: a nurse who held her hand, squeezing back in reciprocity, an anesthesiologist who told her “I will be with you the whole time. I will watch over you. We’ll get you through this.” Simple yet profound, words and actions that sustained her during harrowing procedures. “Gestures of humanity,” Dr. Meyer calls them.    

What’s more, when this kind of respect and communication are established, patients have significantly better health outcomes and provider job fulfillment and retention increases. 

“If a clinician feels like I did a good job today, I connected, that buoys the clinician. The clinician feels more efficacious,” she explains. 

These conversations matter across the lifespan in any specialty, of course; however, the perinatal period is of special importance, because perinatal experiences have generational physiological and psychological implications. This time period influences the mother-child relationship for a lifetime.   

Having endured multiple pregnancy losses and IVF, Dr. Meyer shares that when her son was born, her initial focus on breastfeeding was primarily nutritional. 

“The connection and attachment that breastfeeding can foster wasn’t as much on my radar,” she says. “But after rising from the ashes of infertility, being able to nurse my baby boy was restorative and healing.” 

Though she and her son were not up against monumental feeding challenges, she consulted a lactation professional as a support person. She says this was immensely helpful to have someone who believed in her, someone joining her in the journey, someone to fortify what was important to her. 

As a provider, Dr. Meyer recalls a few highly distressing stories related to birth and infant feeding when she needed to show up with Courage, Brains, and Heart. She shares one in particular:  

There was a preterm newborn who was admitted to the Intensive care unit with severe birth complications and prolonged anoxia. The baby’s mother was determined and dedicated to breastfeeding her baby. The baby was unable to nurse because she was sustained on life support with a ventilator. Dutifully and with great care, the mother pumped her breastmilk and the baby received the milk through a small nasogastric tube. As a psychologist, I had the great privilege of meeting with the parents to listen to their story, to bear witness to their fledgling parenthood, and to offer support….Those were tender and difficult conversations. We held several family meetings with the team to help determine the baby’s treatment. Given the infant’s devastating brain injury, and poor prognosis, the parents and team agreed with the difficult decision to withdraw life support treatment. After the ventilator was withdrawn, the baby passed away peacefully in her mother’s arms with the father at their side. In a final act of love and dignity, as the parents left the hospital for the last time, the mother left a little bottle of breastmilk at the nurses’ station counter. Testament to a mother’s love, it was a most precious parting gift. The parent-child relationship transcends death. The lactation consultant offered ongoing education and support to the mother who went home without her baby- to pump for comfort and to stand in a warm shower with her back toward the shower head, so as to ease any discomfort. Courage, brains and heart….

As she concludes her Tedx Talk, Dr. Meyer offers some final inspiration: “Once upon a time you wanted to change the world. You still can, one conversation at a time.” 


Learn more about Dr. Meyer’s efforts here.  

 

Happy World Breastfeeding Week and National Breastfeeding Month!

It’s World Breastfeeding Week (WBW) and National Breastfeeding Month (NBM)! This time of year, we come together to celebrate our successes, reflect on the challenges we’ve overcome and those that are still ahead, to continue our momentum and reignite passion and purpose.

The 2024 World Breastfeeding Week campaign’s focus is on survival, health and wellbeing. It showcases the need to improve breastfeeding support to reduce inequalities that exist in our society with a special focus on breastfeeding in times of emergencies and crises. There are so many ways to engage. Check out this interactive map here. 

And this year’s NBM theme, Nourish, Sustain, Thrive, shines a light on why protecting, promoting, and supporting lactation is so important for the human life cycle. This summer, we honor the incredible work that organizations are doing to make the world a little more friendly for new parents and families, and highlight how individuals, funders, and policymakers can contribute to a strong and sustainable lactation field. 

We are excited to kick off NBM sharing a short Q&A with U.S. Breastfeeding Committee’s Senior Collective Impact Coordinator  Erin Fortuna, IBCLC. Among her many amazing achievements, Fortuna designed the beautiful NBM logo.

Fortuna’s personal, adverse experiences with birth and breastfeeding in 2017 led her down the path of wanting to make a difference for people in her community, particularly in service to LGBTQIA+ families. As a queer parent, she became a peer-to-peer lactation counselor because she says she wanted to better support those who wished to feed their babies human milk. This ultimately led her to her journey toward becoming an IBCLC.  In 2022, when she came to the USBC, she was newly postpartum with her second child and “knee-deep in the throes of [on-cue] nursing a 3-month-old, constant diaper changes, and all the challenges that come along with new parenthood…at the same time navigating a career change.”

“The USBC was so incredibly accommodating, which enabled me to nurse on demand for an additional two-and-a-half years,” Fortuna continues. “I knew that my ‘luck’ in having this flexibility shouldn’t be luck at all – this should be the standard! From paid leave to equitable lactation support compensation, this journey is a long and winding road toward change, and I am grateful to be a part of such a hardworking team dedicated to a vision for thriving families and communities.” 

Q: What else makes you proud to be a part of USBC?

A: Honestly, so much work happens behind the scenes at the USBC, and this is exciting for me! I get to see organizations come together to collaboratively work on a common goal and knock down barriers that previously separated them. I get to learn from those in the field who are breaking barriers to get the work done and carving their own path to progress. I get to be there to support and celebrate legislative wins and learn how to navigate the disappointment when efforts become derailed or stalled. It’s pretty incredible to watch these building blocks get stacked at the USBC and built as a collective! 

Q: What are you most looking forward to this NBM?

A: I love seeing how many organizations and community-led initiatives create events and celebrations for National Breastfeeding Month. From cultural weekly celebrations to milk banks to hospitals to lactation support programs, every year, I look forward to seeing photos of celebrations and achievements shared with the USBC! It’s a really exciting time, and the momentum from all the awareness generated and the actions taken in support and celebration of NBM-related activities can continue to have an impact year-round.

 Q: You created the NBM logo to reflect “a special harmony and peace that aligns when a nursing dyad’s needs are met.”  Can you please describe your approach to creating the design? 

A: I have been exploring the possibilities of AI generation as it relates to people and faces. We have such limited access to stock images that it becomes challenging to not use the same parent-and-baby or breastfeeding-baby photo that the rest of the field is using. The USBC does have a photo gallery that organizations can use for non-commercial, educational purposes, but I was looking for a new face!  With the help of AI tools, I was able to generate a generic likeness of a dyad that harnessed feelings of harmony and togetherness. From that image, I creatively styled it to reflect a more illustrated and colorful feel. I really wanted it to feel vibrant and lively but also “close to home” for those partners and organizations that would ultimately use it. My hope is that even if the likeness of the dyad doesn’t resonate with folks, the warm embrace between the parent and baby will.

One of my favorite things about NBM is seeing the creativity behind each weekly observance logo and how each organization makes its celebration(s) unique. I like to collect things that support the efforts of these observances like stickers and t-shirts. I have a whole drawer full of them at home!

Q: What’s the best way for folks to get involved with USBC’s important work during NBM? 

A:  Be sure to subscribe to USBC communications! In each edition of our Weekly Wire newsletter, starting in mid-July and ending in mid-September, there is a special section related to National Breastfeeding Month activities. We have a searchable archive of past editions, a form to submit news and information for future issues, and an open call to the field asking for NBM-related activities that the USBC can amplify. Our team sends emails throughout NBM: offering opportunities to celebrate, learn, connect, and take action to help create a landscape of breastfeeding support for families across the U.S. We hope your readership will join us in making a difference this National Breastfeeding Month!

 

A few more suggestions from OMW on how to participate in WBW, NBM and beyond

Raise awareness by purchasing your NBM gear here. 

Healthy Children Project has released a new round of Accessing the Milky Way scholarships in celebration of WBW. Apply here.

Coffee and tea chats hosted by the Academy of Breastfeeding Medicine will be available throughout WBW.  

Watch the Global Breastfeeding Collective’s replay of Are we there yet? and register for Strength in Numbers. 

Acquaint yourself with corporate wrongdoing, the forces that seek to destroy the power of the mother baby dyad.  



Spotlight on Fédora Bernard, Program Officer at The Right Livelihood Foundation

Fédora Bernard is currently Program Officer at The Right Livelihood Foundation, an organization established to “‘honour and support courageous people solving global problems’… now widely known as the ‘Alternative Nobel Prize’”. 

Bernard presenting in Rio.

Before transitioning into her work at The Right Livelihood, Bernard served as Geneva Association for Baby Food and International Liaison Office of the IBFAN Network (GIFA) Program Officer beginning in April 2019, having just newly graduated from the Institut des Hautes Etudes Internationales et du Développement with a Masters in International Affairs. 

This week, Our Milky Way is pleased to share a Q&A session with Bernard. 

Q: Please share a few highlights during your time with IBFAN. 

A: I am deeply passionate about human rights and GIFA was specialized in exactly that. I think that throughout my time at IBFAN, some highlights would probably be the sessions of the Committee on the Rights of the Child that I attended and advocated at, the World Health Assembly, the fifth session of the Open-ended intergovernmental working group on transnational corporations and other business enterprises with respect to human rights and of course, the World Breastfeeding Conference in Rio. They were all avenues where we could raise awareness and advocate for better national policies.

Q:  What would you consider your greatest triumph with IBFAN?

A: I am not sure I could speak of triumph, at the end of the day my time with IBFAN was quite short and all I did was trying to keep up with the amazing work that has been done by the Geneva office for the past 40 years. Nevertheless, I am very proud of the achievements with the Committee on the Rights of the Child, as during my time with IBFAN, “breastfeeding” was mentioned in almost all concluding observations.

Q: In November 2019, you had the opportunity to present IBFAN’s Green Feeding documents. What was that like? How was it received by participants at the World Breastfeeding Conference? 

A: It was an incredible experience, it was an honor to prepare this with Alison Linnecar, who wrote the document and to present it along with experts in the field. I don’t think that I can define myself as an expert, let alone a breastfeeding expert, but I am starting a career in advocacy. I therefore decided that I wanted to emphasize how the Green Feeding Documents could be used as an advocacy tool from an environmental perspective. Therefore, while Alison explained the science behind all of it, I focused on the link between breastfeeding and human rights, more in particular how it can be used in relation to the right to a safe, healthy environment. At the end of the presentation, I was so happy to see that most people in the audience wanted a copy of the green feeding documents…I thought that 30 copies would be enough, but clearly, I was wrong! I wish I had brought more.

Jose Angel Rodriguez-Reyes, expert of the Committee on the Rights of the Child pictured alongside Bernard.

Q: In your piece BREASTFEEDING: BEYOND “WHAT IS BEST FOR YOUR CHILD”, you mention the WHO/UNICEF Global Strategy on Infant and Young Child Feeding to Protect, Promote and Support Breastfeeding. We have the framework for better global health outcomes; What is holding us back? Is there one significant barrier standing in the way of a better world? 

A: I believe that from a political perspective, two things are holding us back: The first being the patriarchy and political systems dominated by men. As long as women will not be allowed to play a greater role in global health governance and domestic politics, public health issues such as breastfeeding or issues surrounding menstrual health will not be given the right amount of attention. 

The second element is political will, which is deeply related to the first. Breastfeeding is only seen as a public health issue in developing countries, and aggressive marketing from the formula industry has managed to convince women themselves that they are actually more empowered if they don’t breastfeed. Breastfeeding is thus seen as a weight imposed on them rather than a right that should be protected, promoted and supported by governments. In some societies, it is indeed currently a real hurdle for women to achieve their breastfeeding goals but instead of women in their breastfeeding journeys benefiting from policies, they are given a bottle. I am of the idea that improved breastfeeding policies are not only a matter of public health but also of women’s rights. 

Q: Any advice on how to navigate a climate where people dispute basic facts?

A: That is a very difficult question…Especially because those disputing basic facts are often deeply attached to their position and will give you alternative “facts”…I believe very much in trusted sources, and would always advise these people to check their sources and question them. For instance, if someone shows me an article from the industry containing “facts on breastfeeding” I would draw their attention on why this article could be biased and not based on adequate scientific evidence.

Q: Breastfeeding is a topic that spans across all disciplines. Will you please give us a glimpse into the work you’re doing at The Right Livelihood? 

A: The Right Livelihood Foundation honors and supports courageous people solving global problems, in all disciplines. IBFAN is actually one of them. With civil society space shrinking all over the world, human rights defenders are facing increasing difficulties, which is very true also for breastfeeding advocates. My work at the foundation therefore consists in using the advocacy skills that I developed with IBFAN, to support laureates all over the world.